I'm walking!!!

The months of February, March, and now April have been productive months for our little hero.  Emmett went for his appointment at the end of February at the local Children's Hospital.  Where he saw the Orthopedic Surgeon, Physiotherapy, and Orthotics!  As well, he had an appointment with Seating for a wheelchair, where we discussed financing options. Luckily our insurance will cover 80% of the chair, 80% of his orthotics, and some other equipment costs every 5 years.  The remaining costs are being applied for through local charities, the money raised through the facebook Fundraiser (Once again! Thank you to all of you who contributed!! Emmett will have his new KAFO's and walker within the next two months).   Emmett got to choose his Orthotics designs (red on top, Thomas on the bottom), and the colors on his wheelchair (Toxic green and electric blue).   The wheelchair should be here during the summer months!  He is so excited, took him two seconds to figure out how to work his new wheels!

Emmett has also been accepted into the "Helping Hearts" program, a Canadian equivalent to the "Inspiration Through Art" in the US.  He will be going for pictures with a local photographer at the first of May!

Here is a video of Emmett using a loaned walker....

Link to Fundraising on Facebook

http://bit.ly/i6YanF

If anyone would like to help out it would be greatly appreciated. :)

Groundhog day...or what some were calling it. Snow-stradomaus....

Eventful day. Relaxing drive there and back with many interesting sights to see. (SB Clinic Appointment was a couple of hours away).   A few ditched cars, a couple of fender benders, a few slip-n-slides, and 0 visibility make for a wonderful trip! 

Emmett's ultrasound was ok. Nothing has changed with his bladder or kidneys for better or worse (which is good). He saw Ortho, Physio, and Orthotics all at the same time, all three were snapping shots of his excellent walking skills. He has done what ALL of them thought he NEVER would do.

He will be getting a long Knee Ankle Orthosis for his left leg and clubbed foot, and he will getting a short AFO for his right foot for support. He no longer needs the stander.  He has two walkers on loan from physio, one forward facing which he has been using all along, and the other supports him from behind (he took to this one immediately). We will be needing to purchase one in the future ($500-600). Going to see if SBHAof NS has some equipment.

 On March 2nd we will be returning to the Rehab for final fitting of his orthotics, and to visit Remedial Seating for consult on a wheelchair! We're so proud of him.  That's all for now. 

I won't get discouraged.

Or at least I'm attempting to remain positive.  I know there are those who want to help.  There are been higher mountains to climb. But financial burdens are just that....burdens, and when they glaringly effect our children, how can we remain positive in the face of such adversity?

I can doooo it! :)

So as I'm hoping some have noticed, I have taken down the "Donate" icon from paypal.  There are a few avenues of funding that we are going to explore in the next little while that does not include direct donations.

First and foremost we need to pay for Emmett's KAFO's and a walker for him, I'm hoping we can seek funding from Shriners for this, and pay the remainder out of pocket (if not too much).  Then Easter Seals NS offers a program for children who require equipment for mobility, etc.  These forms will be filled out, and sent before I know how much money we will need to complete the transactions.

Affirmation

I guess I should add....

In February Emmett and I, along with his Early Interventionist will be taking a trip to the IWK for a day clinic. During this clinic we will be discussing wheelchairs, Knee Ankle Foot Orthosis, and a walker. When I know more I will post more.

I started this page to get a head start on fundraising for the Wheelchair, etc.  In the future I will be looking into other fundraising measures as well. :)

Have a great day!
Charmaine, John, Emmett and Liam