Monday, April 11, 2011

Privacy Concerns on the internet?!? Bah!

I want to thank everyone who has helped our family at this time, from donating money, to allowing me to complain (like a madwoman), to lending your support, and helping coordinate means for us to make the most of his potential. I hope the smile on Emmett's face, and his proud words "I did it!" can be enough retribution at this time. I love you all.

That being said, there was a time in my life when I truly believed that I had no-one. May it be from ignorance, or fear of letting people in, whatever it was it was hard to trust (and I still have a hard time believing) that those around me were being honest with me and forth-coming. Sometimes, I still have that same fear, but this is not because of me, but I fear that those who are friendly and nice to me, are just doing so because they feel sorry for my son. I do not know when I became so cynical towards people, and I am sincerely trying to change that point of view. But where do we draw the line? I am so proud of my boys, especially of Emmett and all of his accomplishments. I think this applies more so to the infamous "Facebook Friend". People will try to add me just so they can look at pictures of Emmett (they have NEVER spoken to me, or have a friendship with me, nor does he know them). Am I supposed to share everything? It is a double-edged sword, especially when you are looking for funding assistance from people you do not know. This is why I made the Exceeding Limitations page on Facebook, for people who were curious about Emmett, so see for themselves. I am more than forthcoming to those who ask questions to me in public. But I believe our family still deserves some sort of privacy. Anyone who reads this....what is your take?

Wednesday, April 6, 2011

April Showers.....

Today we recieved some financially unappeasing information. Emmett's orthotics are going to cost us $1200 up front. Our Insurance company will not pay upfront, instead they will reimburse. We do not have the money for this. But these Orthotic devices are being made....his orthosist deserves to be paid for her hard work, and Emmett deserves the ability to stand up straight.

It's time to hold some major fundraising. While the money raised by myself on Facebook helped us buy Emmett's Nimbo walker, we still do not have the monies to cover the KAFO's.

Emmett was supposed to be born this week, he came three weeks early. His heart big and his soul wise. How do I fix this? Any money raised toward Emmett's leg orthotics, etc cannot be used for income tax purposes. It is time for me to start screaming from the rooftops.

Why is there no justice in this world. Someone once told me when you think positive thoughts, positive things will happen. I have been, oh how I have been. But for every good thing there comes a negative just to balance out the universe. These financial woes aren't going to over-shadow all of the good that is coming out of the orthotics, or walker, or wheelchair. The universe can go find some other sucker to maim. This momma bear is going to find a way.

Sunday, April 3, 2011

I'm walking!!!

The months of February, March, and now April have been productive months for our little hero.  Emmett went for his appointment at the end of February at the local Children's Hospital.  Where he saw the Orthopedic Surgeon, Physiotherapy, and Orthotics!  As well, he had an appointment with Seating for a wheelchair, where we discussed financing options. Luckily our insurance will cover 80% of the chair, 80% of his orthotics, and some other equipment costs every 5 years.  The remaining costs are being applied for through local charities, the money raised through the facebook Fundraiser (Once again! Thank you to all of you who contributed!! Emmett will have his new KAFO's and walker within the next two months).   Emmett got to choose his Orthotics designs (red on top, Thomas on the bottom), and the colors on his wheelchair (Toxic green and electric blue).   The wheelchair should be here during the summer months!  He is so excited, took him two seconds to figure out how to work his new wheels!

Emmett has also been accepted into the "Helping Hearts" program, a Canadian equivalent to the "Inspiration Through Art" in the US.  He will be going for pictures with a local photographer at the first of May!

Here is a video of Emmett using a loaned walker....